February Is Marfan Awareness Month! Nearly Half the People Who Have Marfan Syndrome Do Not Know It.
Marfan syndrome affects an estimated 1 in 5,000 people regardless of race, ethnicity, or gender, and experts estimate that nearly half the people who have Marfan syndrome do not know it. Without proper diagnosis and treatment, they are at high risk for an aortic dissection and sudden death.
Awareness of Marfan syndrome and related conditions leads to early diagnosis, treatment, and an extended lifespan. The most powerful way we can raise awareness is through you, our volunteers. Your circles of relatives, friends, co-workers, and neighbors, your knowledge, your personal journey, and your commitment cannot be matched by anyone outside of our community.
February is Marfan Awareness Month and you can do your part from the comfort of your own home on social media. Join America's Charities and our member, The Marfan Foundation, by participating in the #MarfanVictoryChallenge.