By Rod Gray
Marfan syndrome. I never heard of it either until my son, Owen, was diagnosed with the potentially fatal genetic disorder in 2014, when he was 13 years old. We are among the lucky ones. About 200,000 people in the U.S. have Marfan or a related disorder, but half are not diagnosed. Without a diagnosis and treatment, they are at risk of a sudden early death from a tear in their aorta.